SoVote

Decentralized Democracy

Jill Andrew

  • MPP
  • Member of Provincial Parliament
  • Toronto—St. Paul's
  • New Democratic Party of Ontario
  • Ontario
  • 803 St. Clair Ave. W Toronto, ON M6C 1B9 JAndrew-CO@ndp.on.ca
  • tel: 416-656-0943
  • fax: 416-656-0875
  • JAndrew-QP@ndp.on.ca

  • Government Page
  • Oct/23/23 1:20:00 p.m.

This petition is entitled, “To the Legislative Assembly of Ontario: Help Fund Ehlers-Danlos Syndrome.

“Whereas the Canada Health Act requires provinces to fund medically necessary treatment for Canadians; and

“Whereas a growing number of people in Ontario suffering from Ehlers-Danlos syndrome (EDS) have to seek out-of-country treatment at their own expense because doctors in Ontario don’t have the knowledge or skills to understand EDS symptoms and perform the required delicate and complicated surgeries; and

“Whereas those EDS victims who can’t afford the expensive treatment outside of Ontario are forced to suffer a deteriorating existence and risk irreversible tissue and nerve damage; and

“Whereas EDS victims suffer severe dislocations, chronic pain, blackouts, nausea, migraines, lost vision, tremors, bowel and bladder issues, heart problems, mobility issues, digestive disorders, severe fatigue and many others resulting in little or very poor quality of life; and

“Whereas despite Ontario Ministry of Health claims that there are neurosurgeon doctors in Ontario, who can perform surgeries on EDS patients, when surgery is recommended, the Ontario referring physicians fail to identify any Ontario neurosurgeon willing or able to see and treat the patient;

“We, the undersigned, petition the Legislative Assembly of Ontario as follows:

“Require the Minister of Health to provide funding to hire at least one neurosurgeon who can and will perform neurosurgeries on EDS patients with equivalent or identical skills to the international EDS neurosurgeon specialists, including funding for a state-of-the-art operating room with diagnostic equipment for treatments for EDS patients; and meet the Canada Health Act’s requirement to afford equal access to medical treatment for patients, regardless of their ability to pay for out-of-country services.”

I affix my signature on this petition and hand it over to Danté.

295 words
  • Hear!
  • Rabble!
  • star_border