SoVote

Decentralized Democracy

Jill Andrew

  • MPP
  • Member of Provincial Parliament
  • Toronto—St. Paul's
  • New Democratic Party of Ontario
  • Ontario
  • 803 St. Clair Ave. W Toronto, ON M6C 1B9 JAndrew-CO@ndp.on.ca
  • tel: 416-656-0943
  • fax: 416-656-0875
  • JAndrew-QP@ndp.on.ca

  • Government Page
  • Dec/4/23 1:20:00 p.m.

This petition comes from Ontarians. Thousands of Ontarians have been putting this petition forward now for months. It is to the Legislative Assembly of Ontario:

“Whereas the Canada Health Act requires provinces to fund medically necessary treatment for Canadians; and

“Whereas a growing number of people in Ontario suffering from Ehlers-Danlos syndrome (EDS) have to seek out-of-country treatment at their own expense because doctors in Ontario don’t have the knowledge or skills to understand EDS symptoms and perform the required delicate and complicated surgeries; and

“Whereas those EDS victims who can’t afford the expensive treatment outside of Ontario are forced to suffer a deteriorating existence and risk irreversible tissue and nerve damage; and

“Whereas EDS victims suffer severe dislocations, chronic pain, blackouts, nausea, migraines, lost vision, tremors, bowel and bladder issues, heart problems, mobility issues, digestive disorders, severe fatigue and many others resulting in little or very poor quality of life; and

“Whereas despite Ontario Ministry of Health claims that there are neurosurgeon doctors in Ontario who can perform surgeries on EDS patients when surgery is recommended, the Ontario referring physicians” often “fail to identify any Ontario neurosurgeon willing or able to see and treat the patient;

“We, the undersigned, petition the Legislative Assembly of Ontario as follows:

“Require the Minister of Health to provide funding to hire one neurosurgeon who can and will perform neurosurgeries on EDS patients with equivalent or identical skills to the international EDS neurosurgeon specialists, including funding for a state-of-the-art operating room with diagnostic equipment for treatments for EDS patients; and meet the Canada Health Act’s requirement to afford equal access to medical treatment for patients, regardless of their ability to pay for out-of-country services.”

I want to thank St. Paul’s and the folks across Ontario who are surviving with EDS. I’m glad to see this petition here, and I look forward to supporting them further. I affix my signature and will pass it—

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  • Nov/2/23 1:40:00 p.m.

“To the Legislative Assembly of Ontario: ...

“Whereas a growing number of people in Ontario suffering from Ehlers-Danlos syndrome (EDS) have to seek out-of-country treatment at their own expense because doctors in Ontario don’t have the knowledge or skills to understand EDS symptoms and perform the required delicate and complicated surgeries; and

“Whereas those EDS victims who can’t afford the expensive treatment outside of Ontario are forced to suffer a deteriorating existence and risk irreversible tissue and nerve damage...; and

“Whereas despite Ontario Ministry of Health claims that there are neurosurgeon doctors in Ontario who can perform surgeries on EDS patients when surgery is recommended, the Ontario referring physicians fail to identify any Ontario neurosurgeon willing or able to see and treat the patient;

“We, the undersigned, petition the Legislative Assembly of Ontario as follows:

“Require the Minister of Health to provide funding to hire”—at least—“one neurosurgeon who can and will perform neurosurgeries on EDS patients with equivalent or identical skills to the international EDS neurosurgeon specialists, including funding for a state-of-the-art operating room with diagnostic equipment for treatments for EDS patients; and meet the Canada Health Act’s requirement to afford equal access to medical treatment for patients, regardless of their ability to pay for out-of-country services.”

I support the petition. I thank my St. Paul’s community for signing and will hand it over to Ananya for tabling.

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  • Oct/23/23 1:20:00 p.m.

This petition is entitled, “To the Legislative Assembly of Ontario: Help Fund Ehlers-Danlos Syndrome.

“Whereas the Canada Health Act requires provinces to fund medically necessary treatment for Canadians; and

“Whereas a growing number of people in Ontario suffering from Ehlers-Danlos syndrome (EDS) have to seek out-of-country treatment at their own expense because doctors in Ontario don’t have the knowledge or skills to understand EDS symptoms and perform the required delicate and complicated surgeries; and

“Whereas those EDS victims who can’t afford the expensive treatment outside of Ontario are forced to suffer a deteriorating existence and risk irreversible tissue and nerve damage; and

“Whereas EDS victims suffer severe dislocations, chronic pain, blackouts, nausea, migraines, lost vision, tremors, bowel and bladder issues, heart problems, mobility issues, digestive disorders, severe fatigue and many others resulting in little or very poor quality of life; and

“Whereas despite Ontario Ministry of Health claims that there are neurosurgeon doctors in Ontario, who can perform surgeries on EDS patients, when surgery is recommended, the Ontario referring physicians fail to identify any Ontario neurosurgeon willing or able to see and treat the patient;

“We, the undersigned, petition the Legislative Assembly of Ontario as follows:

“Require the Minister of Health to provide funding to hire at least one neurosurgeon who can and will perform neurosurgeries on EDS patients with equivalent or identical skills to the international EDS neurosurgeon specialists, including funding for a state-of-the-art operating room with diagnostic equipment for treatments for EDS patients; and meet the Canada Health Act’s requirement to afford equal access to medical treatment for patients, regardless of their ability to pay for out-of-country services.”

I affix my signature on this petition and hand it over to Danté.

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  • Nov/15/22 3:10:00 p.m.

I’m rising on behalf of our wonderful community from Toronto–St. Paul’s. A special shout-out to Liza Butcher and other St. Paul’s community members who are living with EDS, and also the ILC Foundation and thousands of others across Ontario who have reached out to our office.

This petition is to the Legislative Assembly of Ontario.

“Whereas the Canada Health Act requires provinces to fund medically necessary treatment for Canadians; and

“Whereas a growing number of people in Ontario suffering from Ehlers-Danlos syndrome (EDS) have to seek out-of-country treatment at their own expense because doctors in Ontario don’t have the knowledge or skills to understand EDS symptoms and perform the required delicate and complicated surgeries; and

“Whereas those EDS victims who can’t afford the expensive treatment outside of Ontario are forced to suffer a deteriorating existence and risk irreversible tissue and nerve damage; and

“Whereas EDS victims suffer severe dislocations, chronic pain, blackouts, nausea, migraines, lost vision, tremors, bowel and bladder issues, heart problems, mobility issues, digestive disorders, severe fatigue and many others resulting in little or very poor quality of life; and

“Whereas despite Ontario Ministry of Health claims that there are neurosurgeon doctors in Ontario who can perform surgeries on EDS patients when surgery is recommended, the Ontario referring physicians fail to identify any Ontario neurosurgeon willing or able to see and treat the patient;

“We, the undersigned, petition the Legislative Assembly of Ontario as follows:

“Require the Minister of Health to provide funding to hire” at least “one neurosurgeon who can and will perform neurosurgeries on EDS patients with equivalent or identical skills to the international EDS neurosurgeon specialists, including funding for a state-of-the-art operating room with diagnostic equipment for treatments for EDS patients; and meet the Canada Health Act’s requirement to afford equal access to medical treatment for patients, regardless of their ability to pay for out-of-country services.”

Speaker, I support this petition, and I affix my signature.

I know this is an issue that has actually impacted former PC MPPs’ own family members. So I hope they’ll get it right this time.

I’m going to hand it over to Havana for tabling.

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  • Oct/25/22 3:10:00 p.m.

I’d like to thank the ILC Foundation and my local constituent Liza Butcher, along with hundreds of other folks across Ontario for their staunch advocacy for the EDS community. I’m glad to join them in amplifying their call to action. This petition is to the Legislative Assembly of Ontario:

“Whereas the Canada Health Act requires provinces to fund medically necessary treatment for Canadians; and

“Whereas a growing number of people in Ontario suffering from Ehlers-Danlos syndrome ... have to seek out-of-country treatment at their own expense because doctors in Ontario don’t have the knowledge or skills to understand EDS symptoms and perform the required delicate and complicated surgeries; and

“Whereas those EDS victims who can’t afford the expensive treatment outside of Ontario are forced to suffer a deteriorating existence and risk irreversible tissue and nerve damage; and

“Whereas EDS victims suffer severe dislocations, chronic pain, blackouts, nausea, migraines, lost vision, tremors, bowel and bladder issues, heart problems, mobility issues, digestive disorders, severe fatigue and many others resulting in little or very poor quality of life; and

“Whereas despite Ontario Ministry of Health claims that there are neurosurgeon doctors in Ontario who can perform surgeries on EDS patients when surgery is recommended, the Ontario referring physicians fail to identify any Ontario neurosurgeon willing or able to see and treat the patient;

“We, the undersigned, petition the Legislative Assembly of Ontario as follows:

“Require the Minister of Health to provide funding to hire one neurosurgeon who can and will perform neurosurgeries on EDS patients with equivalent or identical skills to the international EDS neurosurgeon specialists, including funding for a state-of-the-art operating room with diagnostic equipment for treatments for EDS patients; and meet the Canada Health Act’s requirement to afford equal access to medical treatment for patients, regardless of their ability to pay for out-of-country services.

Thank you to the EDS advocates in St. Paul’s and across Ontario. I sign this petition and will hand it to Julien for tabling with the Clerks.

“Petition to the Legislative Assembly of Ontario:

“Whereas Black, Indigenous, and racialized people are often subject to race-based hair discrimination, including experiencing racism in schools and the workplace—resulting in negative impacts on their lives such as school-based bullying and harassment which impacts academic performance and economic impacts such as job discrimination and reprisal in the workplace for so-called ‘unprofessional’ hair styles or texture;

“Whereas physical presentation, which includes textured hair maintenance and protective styles, is directly linked to physical safety, mental health and sense of identity, self-esteem and confidence;

“Whereas Black, Indigenous and racialized performers with natural textured hair often arrive in their workplace of film/TV and theatre sets with professional hair stylists who have received insufficient training for working with their hair type—risking permanent damage to their physical appearance and therefore earning potential;

“Whereas hairstyling training in Ontario currently only focuses on cutting, designing, permanent waving, chemically relaxing, straightening and colouring hair, but does not have any instruction or practice to ensure every hair stylist can service Black people’s natural hair or the textured hair of many Indigenous and/or racialized community members, whether performers or otherwise;

“Therefore we, the undersigned, petition the Legislative Assembly of Ontario to immediately pass MPP Andrew’s motion ... calling for the government of Ontario and Ministry of Labour, Training and Skills Development which regulates the hairstyling trade profession in Ontario to amend the hairstyling program standard to mandate culturally responsive training, specific to Black and textured hair in hairstyling education and practice across Ontario.”

I 100% support this petition and thank the folks of St. Paul’s, the folks of ACTRA, and many performers and otherwise across Ontario who have signed this. I’m tabling it with Karma.

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