Hon. Ratna Omidvar moved the adoption of the report.

She said: Honourable senators, Bill S-203, An Act respecting a federal framework on autism spectrum disorder, provides the legislative foundation for the development of a federal framework on autism spectrum disorder.

This bill was referred to the Standing Senate Committee on Social Affairs, Science and Technology for second reading on December 8, 2021. Over the course of two meetings, the committee heard from the sponsor of Bill S-203, the Honourable Senator Leo Housakos; and our former colleague the Honourable Jim Munson; as well as 12 individuals and five organizations. On behalf of the committee, I would like to take a moment to thank all those witnesses who shared their knowledge and their lived experience with us, acknowledging in particular the voices and perspectives of autistic self-advocates.

The committee is recommending several amendments to Bill S-203 that reflect the testimony and discussions we heard.

Witnesses all agreed on the important role of autistic self-advocates, their families and caregivers, both in the consideration of Bill S-203 and the proposed federal framework to follow.

Two amendments emphasizing the central role are therefore suggested by the committee. In the preamble, an additional paragraph is recommended stating that “. . . the development of that federal framework would benefit from the involvement of autistic Canadians, their families and their caregivers . . . .”

The second proposed amendment makes changes to the list of relevant stakeholders with which the Minister of Health must consult in advance of developing the framework. Clause 2(3)(c) now specifies the consultation of self-advocates, caregivers and support persons, in addition to adding service providers and representatives from Indigenous communities.

At committee, autistic self-advocates discussed the importance of the choice of language and vocabulary, and also emphasized the diversity of their lived experiences. The committee is therefore recommending an amendment to the second clause identifying the measures to be included in the framework. The proposed amendment strengthens clause 2(2)(d), emphasizing acceptance of autism spectrum disorder as well as intersectionality and inclusivity.

Once again, the committee would like to thank Senator Housakos for his long-time advocacy and work on supporting the community of autistic people in Canada. In his testimony, he stressed the important work to come in the consultation phase and eventual drafting of the framework, and thus stated that the bill is only a starting point and he had intentionally made it open-ended. Witnesses shared that they appreciated that Bill S-203 was not overly prescriptive or limiting in their future work.

However, the committee is recommending two amendments that ensure that the Minister of Health will have all available opportunities for a fulsome consultation and implementation of measures in the framework, adding language that the minister may also include anyone and anything else that he or she considers appropriate at those stages.

Finally, based on testimony we heard about current challenges in research, diagnosis, information and treatment of autism, two amendments were recommended for the proposed measures to be included in the federal framework. An additional measure has been added to address the current challenges in timely and equitable access to screening and diagnosis, and the existing measure (e) is further refined to specify providing sustained, accessible and culturally relevant resources, both online and offline, that focus on evidence-based information.

Hon. Ratna Omidvar: Honourable senators, I have the honour to present, in both official languages, the sixth report of the Standing Senate Committee on Social Affairs, Science and Technology, which deals with Bill S-203, An Act respecting a federal framework on autism spectrum disorder.

(For text of report, see today’s Journals of the Senate, p. 499.)