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Decentralized Democracy

House Hansard - 288

44th Parl. 1st Sess.
February 29, 2024 10:00AM
Context: House Hansard - 288 - Feb/29/24
Mr. Tom Kmiec (Calgary Shepard, CPC)
  • Feb/29/24 2:00:20 p.m.
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Mr. Speaker, the rarest day of the year is upon us once more. February 29 appears once every four years, and it is quite a fitting day to mark this occasion. My family is affected by two rare diseases. Three of my living kids have a rare chronic kidney condition called Alport syndrome. My youngest daughter passed away from Patau syndrome in 2018. Since I rarely do haikus in the chamber, here is one for Rare Disease Day: February's untold stories, Rare blooms, unique tales told, Hope's flame in hearts hold.Whispers in Parliament, Rare voices echo, Unity calls.Advocacy's stand, Empathy's firm command, For unseen struggles, we demand.Legislation sought, For rare tales, medicines brought, help in battles fought.Through research we strive, minds open wide, Bright tomorrows guide.Rare Disease Day calls, Echoes in the hearts it seeks, Voices of compassion speak. I join all parliamentarians in marking this Rare Disease Day.
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