Hon. Jane Cordy: Honourable senators, it is my pleasure to rise today to celebrate the achievement of one of our own senators. On Saturday evening, Afroglobal Television hosted their 2022 Excellence Awards, and our honourable colleague Senator Wanda Thomas Bernard was a recipient of the Lifetime Achievement Award.

The Excellence Awards gala — whose master of ceremonies this year was MP and parliamentary secretary Greg Fergus — has a stated mission:

. . . to showcase the achievements of individuals, organizations, businesses and agencies that make a profound difference in the lives of people of African descent, and to transform the communities where they live.

The Afroglobal Television Excellence Awards recognize both Canadian and international recipients and celebrate “the best of Africa & the Global Diaspora.”

Senator Bernard joins an impressive list of past recipients of the Lifetime Achievement Award, including the Honourable Zanana Akande, the first Black female minister and member of provincial parliament; and the Most Honourable Portia Simpson-Miller, the first female prime minister of Jamaica.

As we all know, Senator Bernard was the first African-Nova Scotian woman to be appointed to the Senate of Canada, and this award celebrates that achievement — one of many on the list of reasons for recognizing her at this ceremony. They highlighted her other impressive honours: the Order of Nova Scotia, the Order of Canada, the Frank McKenna Award for Leadership in Public Policy and being named among the 100 Most Influential Black Canadians.

The human rights work that Senator Bernard has pursued in the service of African Canadians, and, in particular, African Nova Scotians, is commendable. I am pleased to see the impact that she has made in our home province of Nova Scotia, in this chamber and, indeed, across the country. And I know she is not done yet.

I invite all honourable senators to join me in congratulating Senator Wanda Thomas Bernard, the recipient of the 2022 Lifetime Achievement Award of Afroglobal Television’s Excellence Awards program. Thank you.

Hon. Jane Cordy: Honourable senators, I rise today to recognize the month of September as Sickle Cell Awareness Month. Sickle cell organizations across Canada use this month to raise the profile of sickle cell disease and to improve the disease management skills of individuals, their families and their caregivers. Furthermore, it is an opportunity to roll out educational activities among care providers, to increase knowledge of the disease and to reduce stigma and systemic racism experienced by individuals when seeking medical care.

This year’s theme is “The Lesser Told Stories of siblings with Sickle Cell Disease.” Lanre Tunji-Ajayi, an active leader within the sickle cell community and president of the Sickle Cell Awareness Group of Ontario, speaks often of her experiences as the eldest of eight and having two siblings with sickle cell disease. Lanre continues to support those with sickle cell disease here in Canada and around the world.

Due to the nature of the disease, it is very difficult for those living with sickle cell disease to continue their education and to work at the same time. Because of this, the Sickle Cell Awareness Group of Ontario has established the Sunday Afolabi Scholarship Grant and the Sholape Animashaun Scholarship Grant for Canadians with sickle cell disease to inspire and to help them in their pursuit of higher education. Honourable senators, this funding is instrumental in allowing Canadians with sickle cell disease to achieve their dreams while still managing their day-to-day living with the disease.

Honourable senators, it is truly remarkable the work that is being done by Canadians affected by sickle cell disease. Their commitment to furthering awareness and effecting change is second to none. I have been so fortunate to meet many of them, and they have been so open and honest when sharing their stories.

While there is an acute focus during the month of September and for National Sickle Cell Awareness Day on June 19 of every year, it is important that we keep these Canadians in the forefront throughout the rest of the year as well. I urge you to learn more about sickle cell disease and invite you to take part in the virtual Sickle Cell Summit on November 4 and 5, whose theme for 2022 is “Delivering Equity in Sickle Cell Disease, Lessons from the Pandemic.” Those living with sickle cell disease, as well as their families and caregivers, are eager to share their stories with you.

Thank you.

Hon. Jane Cordy: Honourable senators, yesterday, on Sunday, June 19, we celebrated World Sickle Cell Day and National Sickle Cell Awareness Day in Canada. The recognition of this day has been extremely important and meaningful to the sickle cell community in Canada. Not only does it bring awareness to the disease, but it allows us to celebrate advancement in sickle cell care and it encourages momentum for the work that is left to do.

Since first becoming involved with the sickle cell community through an advocacy event on Parliament Hill in 2013, I have come to know many sickle cell patients, caregivers, supporters and advocates. They speak passionately about their experiences and best next steps to support Canadians living with this disease. The goal is to develop a national strategy for early sickle cell detection and sickle cell care. Honourable senators, I believe this is an achievable goal.

While sickle cell disease is inherited and can affect anyone who has both parents with a sickle cell trait or sickle cell and another hemoglobin trait, it is primarily found in people who are Black, Southern European, Middle Eastern or of Asian-Indian ancestry. It is therefore important to note that systemic racism in health care is, unfortunately, a reality for sickle cell patients. Individuals who present at Canadian hospitals with pain are sometimes treated as drug seekers when compared to their non‑racialized counterparts. Racial injustice in health care must be stopped. The Sickle Cell Awareness Group of Ontario have committed themselves particularly to equitable access to comprehensive standard care across the province.

To those who work so diligently on behalf of Canadians with sickle cell disease, I want you to know that your work, energy and enthusiasm are valued. I would like to express my deepest thanks to Lanre Tunji-Ajayi, Biba Tinga, and Rugi Jalloh for the work they have done and the work they continue to do. I also extend my thanks to MPs Darren Fisher and Dr. Kirsty Duncan for their advocacy for those with sickle cell disease and their families. They work tirelessly to keep sickle cell disease and the needs of those with sickle cell at the forefront. Honourable senators, it seems like most days out of the year are linked to recognizing some particular event or disease. It would be easy to dismiss such bills as frivolous; I assure you, they are not. They mean something.

When National Sickle Cell Awareness Day was passed in 2017, the community was overjoyed. Each new person who is made aware of this disease, donates blood or advocates for legislation moves the needle slightly and allows us to better care for Canadians struggling with the disease. This is the reason that on June 19, we celebrate. I encourage you to take some time to learn about sickle cell disease and to meet and speak with those affected in your communities. I have no doubt you will be as touched by their passion as I have been. Thank you.

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