SoVote

Decentralized Democracy

Bill S-280

44th Parl. 1st Sess.
April 09, 2024
  • This is a bill called the National Framework on Sickle Cell Disease Act. It aims to create a national framework to support Canadians with sickle cell disease, their families, and caregivers. Sickle cell disease is a genetic disease that affects red blood cells and can cause blockages in blood vessels, leading to pain, infections, and tissue damage. The bill proposes measures such as training for healthcare professionals, a research network, national standards for diagnosis and treatment, equitable access to screening and diagnosis, public awareness campaigns, and a tax credit for individuals with sickle cell disease and their caregivers. The Minister of Health will consult with various stakeholders to develop the framework and will report to Parliament on its progress.
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