SoVote

Decentralized Democracy

Senate Bill

Bill S-280

44th Parl. 1st Sess.
April 09, 2024
National Framework on Sickle Cell Disease Act
  • This is a bill called the National Framework on Sickle Cell Disease Act. It aims to create a national framework to support Canadians with sickle cell disease, their families, and caregivers. Sickle cell disease is a genetic disease that affects red blood cells and can cause blockages in blood vessels, leading to pain, infections, and tissue damage. The bill proposes measures such as training for healthcare professionals, a research network, national standards for diagnosis and treatment, equitable access to screening and diagnosis, public awareness campaigns, and a tax credit for individuals with sickle cell disease and their caregivers. The Minister of Health will consult with various stakeholders to develop the framework and will report to Parliament on its progress.
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SteelmanSpren in Favour

  • Steelman Argument in Favor of Bill S-280: Bill S-280, the National Framework on Sickle Cell Disease Act, proposes the development of a national framework to support Canadians with sickle cell disease, their families, and their caregivers. This legislation is necessary and beneficial for several reasons. Firstly, sickle cell disease is a genetic disease that affects a significant number of individuals, particularly those originating from Africa, the Caribbean, the Middle East, South America, and certain regions of India and the Mediterranean. By developing a national framework, the government can address the unique challenges faced by individuals with sickle cell disease and ensure equitable access to necessary healthcare services and support. Secondly, sickle cell disease can have severe health implications, including chronic pain, serious bacterial infections, and tissue death. By establishing evidence-based national standards for the diagnosis and treatment of sickle cell disease, the national framework can improve the quality of care provided to individuals with the disease. This will help alleviate their suffering and improve their overall health outcomes. Thirdly, the national framework aims to enhance public awareness of sickle cell disease. Currently, the disease is little known to the public and even to health professionals. By supporting public awareness campaigns, the government can educate the public and healthcare professionals about the disease, its symptoms, and the available treatments. This increased awareness can lead to earlier diagnosis, better management of the disease, and improved support for affected individuals and their families. Additionally, the national framework proposes the creation of a national research network and registry on sickle cell disease. This will facilitate research efforts, improve data collection, and enhance collaboration among researchers and healthcare professionals. By advancing research on sickle cell disease, the national framework can contribute to the development of new treatments, improved diagnostic tools, and better understanding of the disease's impact on individuals and their families. Furthermore, the national framework recognizes the importance of neonatal screening for sickle cell disease. By extending neonatal screening across Canada, the framework can improve early diagnosis and reporting, ensuring that affected individuals receive appropriate treatment and support from an early age. Lastly, the national framework includes an analysis of implementing a tax credit for individuals with sickle cell disease and their caregivers. This recognizes the financial burden that individuals and families may face due to the costs associated with managing the disease. By providing a tax credit, the government can alleviate some of the financial strain and support affected individuals and their caregivers in accessing necessary resources and support services. In conclusion, Bill S

SteelmanSpren Against

  • Steelman Argument Opposing Bill S-280: An Act respecting a national framework on sickle cell disease Introduction: While the intention behind Bill S-280, to develop a national framework to support Canadians with sickle cell disease, may seem noble, it is important to consider the potential negative consequences and the role of government in addressing healthcare issues. This steelman argument will present right-wing anti-government talking points to oppose the implementation of this bill. 1. Limited Government Intervention: Right-wing ideology emphasizes limited government intervention in the economy and individual lives. The development of a national framework on sickle cell disease would require significant government involvement, which goes against the principles of limited government. It is not the role of the government to dictate healthcare policies and frameworks. 2. Individual Responsibility: Right-wing ideology promotes individual responsibility and self-reliance. By implementing a national framework, the government may inadvertently discourage individuals from taking personal responsibility for their healthcare. It is important to encourage individuals to seek out their own healthcare solutions and take ownership of their well-being. 3. Market-Based Solutions: Right-wing ideology favors market-based solutions over government intervention. Instead of relying on a national framework, the government should encourage competition and innovation in the healthcare sector. This would allow for the development of more efficient and effective treatments for sickle cell disease, without the need for government regulation. 4. Fiscal Responsibility: Right-wing ideology emphasizes fiscal responsibility and limited government spending. Implementing a national framework on sickle cell disease would require significant financial resources, which would ultimately be funded by taxpayers. It is important to prioritize spending and allocate resources to areas that have a broader impact on society as a whole. 5. State vs. Provincial Responsibility: Right-wing ideology supports the decentralization of power and decision-making. Healthcare is primarily a provincial responsibility in Canada, and implementing a national framework would infringe on the autonomy of the provinces. It is more appropriate for each province to develop its own strategies and frameworks to address sickle cell disease, based on their unique needs and resources. Conclusion: While the intention behind Bill S-280 may be to support Canadians with sickle cell disease, it is important to consider the potential negative consequences and the role of government in addressing healthcare issues. Right-wing ideology emphasizes limited government intervention, individual responsibility, market-based solutions, fiscal responsibility, and decentralization of power. These principles argue against the implementation of a national framework on sickle cell disease and instead promote individual choi
Senate Second Reading
  • Nov. 7, 2023, 2 p.m.
  • In Progress
  • Read
Senate First Reading
  • Nov. 7, 2023, 2 p.m.
  • Passed