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Decentralized Democracy

House Hansard - 139

44th Parl. 1st Sess.
December 1, 2022 10:00AM
Context: House Hansard - 139 - Dec/1/22
Ms. Rachel Blaney (North Island—Powell River, NDP)
Madam Speaker, I am honoured to speak to Bill S-203, respecting a federal framework on autism spectrum disorder. Before I speak about this really important bill, I want to recognize that today is my grandson's birthday. I want to wish him a very happy birthday. I wish I could be with him. As so many of us in this place know, we miss a lot of important days. It is hard for me to miss his birthday today, so I just wanted to wish him all the best. I want to give many thanks to the member for Edmonton—Wetaskiwin. I know about his advocacy. I have certainly seen this bill in this place before. I hope that we finally get it through. It is so important. I think the basis of this is really about how we look at this whole country and make sure that everyone feels like they belong. One thing that is very clearly a challenge in a country as big as ours is that often different provinces and territories have different services that do not always meet the need. It is really important that when we look at this framework, we understand that by bringing everyone together. We want to see the best supports in place for those living with autism spectrum disorder and for those who love them the most. Whenever one of our fellow members brings their human experience, their lived experience, to this place to say, as a person who lived through these realities, here is a way we can make life better for everyone, we should all pay attention. We should all listen and make sure that when we speak to this issue, we speak in a collective voice. I certainly hope that is what happens. This really talks about having a national framework and making sure there is a timely and equitable process for people to access screening and diagnosis so that they are able to access the supports that are there. It is also so much about providing good financial supports. Often folks living within this group have challenges. There are extra needs. We want to make sure that people have the supports they need to do this well and that there is support for caregivers. There is nothing worse than seeing people who are working so hard giving all of that care and they burn out because we do not have the proper supports in place for them. We do not want to see that happen. We want there to be success where there should be success. This also talks about having meaningful research and the resources there to provide that research so that those services are there. In that way, our communities can do better and we can provide an adequate service, community connection, so that people can succeed. I often think about this. I think about how we can pay attention to what is happening to all of the people in our communities so that no one gets left behind. I think about how we can take the time to notice where those blocks are and remove those blocks so that we can have that wholesome support. Public education is part of this framework. That is incredibly important. It is only with education that we draw so much more awareness and allow people to hold this information. It creates an environment of curiosity. That is really important. I cannot say enough from my perspective about how much we need to have curiosity so that when somebody is a bit different from us, instead of us being afraid, we really open doors, ask questions and learn how we can work with people in a more meaningful and profound way. What we know based on so much research is that people in our communities have been left behind. It is shameful that in this country things fall apart. That really worries me. I often think of Maya Angelou, who is a great hero of mine. She used to say that when we know better, we do better. That is why public education is important because, hopefully, the more we know, the more opportunity we can see, the more doors can be opened and the more inclusive our communities will become. We also know that, if there is a co-occurring condition, it is even harder for families to be successful. There is a complexity, and added challenges, that we need to address, which is part of the reason this framework is so important. It brings people to the table to talk about the co-occurring conditions and what they mean going into the future. If we are going to provide and build communities that we can be proud of, a country that we can be proud of, we really need to make sure that that is done. We know that resources around knowledge and research are desperately needed. We also know that rural and remote communities are often challenged to provide the services. This is a big concern for me. For myself, representing a rural and remote community, I see all too often that the services that are desperately needed across the board are just not there, and the people who are trying to provide those services are doing their very best. However, often when we look at service delivery, we forget that broad areas with lots of travel for service providers becomes very challenging, and asking families to travel big distances is another challenge. We need to be looking at this. This is really important. I have spoken to people in my riding who deliver services, who work with families, and they talk about this repeatedly. They need more time. They need the right services in place. We need to find pathways so we are not sending families far away from home to get help because it just adds another burden. It is harder to get ahead. It is harder to do the everyday things of life. It is harder to maintain employment, sometimes, because of the high needs and care that are required. I really hope that, when we look at this framework, we are really attentive to making sure that the needs that are out there are supported, regardless if people live in a more urban centre or in a more rural centre. One of the things that is so important about this bill as well is that it talks about that coordinated effort, bringing all levels of government together to make sure we are not seeing overlap, and where there are gaps, identifying them and finding the resources to fill those gaps. This is so important. I am grateful to be here to speak to this bill. In closing, I just want to say that the most important part for me, and I think we are almost there in this bill, is the concept of “nothing without us when it is about us”. I need to be very clear that is something the NDP will be making sure of. What we do not want to see happen is a framework put into place where people who are not living this every day, who are not supporting it every day, are having more of a say than those who are experiencing it. The NDP will be supporting this bill. I look forward to seeing it finally getting through this place and out into the country so we can see better supports, and identify those key challenges, to building a better Canada for everyone.
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