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Decentralized Democracy

House Hansard - 88

44th Parl. 1st Sess.
June 14, 2022 10:00AM
Context: House Hansard - 88 - Jun/14/22
Mr. Sameer Zuberi (Pierrefonds—Dollard, Lib.)
  • Jun/14/22 2:09:03 p.m.
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Mr. Speaker, June is CDKL5 Awareness Month. Amelia is a five-year-old resident in my riding. She is a young girl in Pierrefonds—Dollard who suffers from this rare disease. CDKL5 is a neurodevelopmental condition caused by a rare gene mutation. It also is one of the most common forms of genetic epilepsy among young girls. Amelia lives with this disorder, and it is an honour to talk about her bravery here today. Amelia's parents have been making her home accessible for her, fundraising so that her home is safe. Throughout it all, Amelia has been cheerful, spreading love and joy all around her. CDKL5 Awareness Month's motto is, “Hope. Love. Cure.” I encourage Canadians to learn about this disorder during this month.
129 words
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