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Decentralized Democracy

Chris Lewis

  • Member of Parliament
  • Member of Parliament
  • Conservative
  • Essex
  • Ontario
  • Voting Attendance: 68%
  • Expenses Last Quarter: $172,107.39

  • Government Page
  • Nov/7/23 10:08:42 a.m.
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Madam Speaker, it is an honour to rise this morning to present, on behalf of petitioners, petition e-4414. The petitioners state that one in 10 Canadians has a rare disease and faces immense challenges in getting the appropriate care to survive and get better, that one in 15 babies in Canada is born with a rare disease and that the Government of Canada announced an investment of up to $1.5 billion over three years as part of its national strategy. The petitioners call upon the Government of Canada to implement the national strategy for drugs for rare diseases, work with the provinces to ensure immediate access to rare disease medicine, extend the funding for rare disease medicine, ensure that CORD and the Regroupement québécois des maladies orphelines are key partners in discussions, and finally, build out the NSDRD to include centres of expertise.
149 words
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