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House Hansard - 131

44th Parl. 1st Sess.
November 21, 2022 11:00AM
  • Nov/21/22 2:05:49 p.m.
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Mr. Speaker, in the summer of 1995, John Davidson pushed his son Jesse in his wheelchair across Ontario in what was known as “Jesse’s Journey”. What was the purpose of this journey? It was to raise funds and awareness for Duchenne muscular dystrophy. In 1998, John walked across Canada to continue the journey. Along the way he would break a Guinness world record for the fastest crossing of Canada by foot, but more importantly, he raised another $1.5 million for Duchenne research. Since then, Jesse’s Journey has granted more than $16 million in research funding. Twenty-seven years after it all began, Jesse’s Journey is now Defeat Duchenne Canada. The name might have changed, but the purpose remains: a world where those born with Duchenne can live long and healthy lives. John Davidson, representatives from Defeat Duchenne Canada and Duchenne families, such as grade 7 student James Allen, who is living with Duchenne, are in Ottawa today. I hope all members will join me in welcoming them to Ottawa and committing to the hard work and resources necessary to defeat Duchenne and other rare diseases.
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