Hon. Chantal Petitclerc: The number of Canadians who live with a disability is 6.2 million. We make up 22% of our population, and yet we continue to be marginalized and under-represented.

Hon. Chantal Petitclerc: The number of Canadians who live with a disability is 6.2 million. We make up 22% of our population, and yet we continue to be marginalized and under-represented.

Canadians with disabilities certainly are not — and never will be — a homogeneous group. On the contrary, they are the epitome of diversity. Their disability ranges from hearing loss, vision impairment and blindness to temporary or permanent loss of mobility, and many others. The daily reality of persons with disabilities is impacted by a vast array of other factors.

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While many obstacles remain, our abilities too are diverse, and persons with disabilities have, more than ever, an active presence in today’s Canada. We are in the arts, in faculties and in sports. We are lawyers, doctors, teachers, entrepreneurs, MPs, ministers and senators.

However, let not these success stories hide the fact that out of those 6.2 million people with disabilities, one out of four cannot afford access to care, aids, devices or medical prescriptions. Out of those 6.2 million, 41% of working age are unemployed, and even when they are employed, they make less. One thing that persons with disabilities all have in common is that they will face barriers and challenges just to get what they have a right to.

As a society, we have a responsibility to help take down these barriers, one by one, at every chance we get. This is why today I want to speak in support of Bill C-22, An Act to reduce poverty and to support the financial security of persons with disabilities by establishing the Canada disability benefit and making a consequential amendment to the Income Tax Act.

I will speak about this bill with a great deal of hope and some questions.

[Translation]

Many have said this before. This bill, which is really a framework for developing future compensation, leaves us in the dark in terms of how much, when, and how. These are critical questions, because we’re expected to take a stand with facts, not just hope.

Let’s start with the question that is on everyone’s mind: How much will this compensation be?

The quick answer is that we haven’t seen any numbers. We do have some clues, however, such as the name of the bill and its preamble, which highlights the intended purpose of reducing poverty, providing financial security and meeting our international commitments to people with disabilities.

Minister Qualtrough was clear in both the House and committee when she said, and I quote: “Today, I begin with the following declaration: in Canada, no person with a disability should live in poverty.”

[English]

Here in this chamber, the sponsor of the bill, Senator Cotter, stated that the fourth pillar of the bill is:

. . . financial security, so that we can reduce poverty and improve financial security for hundreds of thousands of persons with disabilities.

But the fact remains that we don’t know how much the benefit will be, and we will not know that when we are asked to vote.

Clause 11(1.1) of the bill provides that in making regulations respecting the amount of a benefit, the government “. . . must take into consideration the Official Poverty Line as defined in . . . the Poverty Reduction Act.“ This came after an amendment from MP Zarrillo, and I want to thank her and the members of the House of Commons Human Resources Committee for this addition in the bill that gives us some concrete direction.

But I will argue that if we aim for the poverty line, it will not be enough to lift persons with disabilities out of poverty. Allow me, colleagues, to start with a harsh reality: Living with a disability is expensive, more than many can imagine.

[Translation]

In calculating the consumer basket, Statistics Canada takes into account basic needs: food, clothing, housing and transportation. People with disabilities, however, have to spend a lot in addition to these basic needs regardless of the services available in their province. I know quite a few people with disabilities, and I can tell you for a fact that everything costs more, no matter how much you earn. Accessible housing, transportation, recreation, not to mention adaptive equipment, everything is more expensive.

Take this wheelchair cushion, for example, which a lot of people with spinal cord injuries use. It can cost as much as $800. I need it for medical reasons. To get it, I have to go see my doctor, who writes a prescription, which I pay for. Then I have to get to a supplier or a rehab centre. Then I have to wait four or five months to get it because it is custom made.

Quebec covers the cost of this cushion every two or three years, but because it is inflatable, it never lasts three years. Inflatable cushions are prone to bursting. Within a year, it’s already been patched two or three times, and eventually, I have to pay for a new one out of pocket or limit the length of time I spend sitting on it.

I have the privilege of being able to afford this cushion, but not everyone does. And that is just one of many examples. Even basic necessities can be much more costly. Those who have lost most of their autonomy won’t, for example, have the freedom or ability to do their own grocery shopping and to cook with less expensive products. They might have to buy prepared meals and pay more.

I’m not even talking about treatments. Programs offer a limited number of treatments even though people need more to maintain their health, their autonomy and their well-being. When living in poverty, what cuts can they make to afford these treatments? Often, they forgo basic necessities.

[English]

If we are committed to lifting persons with disabilities out of poverty, we must realize that aiming at the poverty line may not be enough and may not provide adequacy. I hope that this will be taken into account in the regulatory process.

I remain puzzled as to why the government is not sharing their estimate. I understand that this is a framework bill, of course, but it has been in the making for three years. Surely, someone somewhere would have an idea of the amount that any current or future government will have to include in its budget to cover the needs of this support measure. I am looking forward to the opportunity to ask this question in committee.

And what about possible clawbacks? How do we ensure they do not happen?

[Translation]

During a committee study in the other place, 17 organizations, three individuals and 153 briefs were considered. The vast majority of these witnesses expressed concerns about possible problems and clawbacks. The organizations I talked to also reiterated these concerns, which I share.

[English]

How do we make sure that provinces will not take this opportunity to claw back or to cut other programs or financial supports? As of now, there is no formal commitment from the provinces and no commitment from the different insurance programs, yet persons with disabilities are asked to trust, even when history tells them that programs are often cut with changes in governments; that insurance companies will always try to provide as little as possible, even when it is a right; and that consultants will always find a way to use vulnerabilities to charge money in exchange for filing papers.

How do we provide efficiency in delivery, a system that will prevent clawbacks, monitoring of that system and a way to protect persons with disabilities when it fails?

Let me read you an intervention by John Stapleton in The Hill Times, a former Ontario civil servant and social policy expert who is consulting on the design of the Canada disability benefit. From the height of his experience, he reminds us that:

The disability space is the most complex, by far. There are 10 different disability income programs in Canada. We don’t have that with the Canada Child Benefit. We don’t have that with seniors.

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Still according to him:

In the disability space, we’ve got workers’ compensation, we’ve got the Registered Disability Savings Plan, we’ve got EI sickness, Canada Pension Plan disability, two veterans programs, welfare, employer-based programs, disability accident insurance. And all of those are playing in that same sandbox. And then the Canada Disability Benefit comes along. Does it replace those programs? Should it? These are questions that have to be asked and answered.

[Translation]

Take Quebec for example, a province where, according to the Office des personnes handicapées du Québec, the government offers 248 programs, measures and services for persons with disabilities, their families and their loved ones.

These programs and these measures, managed by 20 or so departments, can take the form of direct delivery of services and equipment. They can also be tax measures, refundable or non-refundable tax credits, deductions, exemptions, expense claims or direct subsidies.

This is in addition to people with disabilities who receive a pension following a workplace accident or benefits for highway accident victims. There’s a good chance I’m forgetting some people.

What can we do to bring in a proper system that ensures that people with disabilities have access to these provincial services and benefits, to calculate the right support from the Canadian benefit and ensure that nothing is clawed back?

[English]

Because what scares me is not that one province would claw back and cut a direct benefit to individuals. This would be quick to flag.

What I worry about are the smaller programs or services — individuals or organizations that would argue, “Well, now that the benefit allows you to have in your hands an amount that you did not have before, maybe we don’t have to subsidize that second physio treatment a month. Maybe we don’t need to pay for your $800 prescribed cushion.” This will be much more difficult to find out and equally damaging in achieving the objectives of this bill.

Fewer services would force persons with disabilities to cover those services with the benefit, and this would drag them right back into poverty. So how do we make sure it’s all monitored properly? And if something goes wrong, and I suspect it will at some point, how do we make 100% sure that the person with a disability will not be in charge, responsible for proving something was clawed back? Surely it can be done, but I can see a level of complexity that worries me. I’m not sure we heard many solutions. I am looking forward to exploring this aspect in committee, among others.

[Translation]

How can we get commitments from the provinces, insurance companies and subsidized programs?

Will the signed agreements stay the same if there are changes to the federal or provincial governments? How can we ensure that, even at the federal level, the amount won’t change if the government does? Will the eligibility criteria take into account the different definitions of the term “disability”? Will there be a variety of eligibility criteria both between and within the provinces?

As I said in the introduction of my speech, I have a lot of hope, but I’m also asking myself a lot of questions.

[English]

Honourable colleagues, allow me to share a few more thoughts before I conclude.

In our country built on shared competencies and responsibilities, it is not one major piece of legislation that will remove all barriers and be groundbreaking for persons with disabilities. On the contrary, it will be many pieces of legislation at all levels, many pieces of one big puzzle, that we must build together one piece at a time. This is one of them. It has the potential to make a difference, but it will not be enough.

Let’s make sure that we don’t rest on this. It would be a shame to use this disability benefit act as a justification or an excuse to stop working hard in order to remove all the barriers. While this has the potential to help many, this country needs to continue to commit to removing barriers to workplaces, education and all spheres of life for the 6.2 million Canadians living with a disability.

Let’s continue to highlight the challenges but also the successes of persons with disabilities in Canada.

As I speak today, my thoughts go to disability rights advocate Judy Huemann, who passed only a few days ago. I had the privilege and pleasure to cross paths with this legend on a number of occasions. Never a victim, always a trailblazer, Judy, the self-proclaimed “Rolling Warrior,” said:

Disability only becomes a tragedy for me when society fails to provide the things we need to lead our lives . . . .

So simple and yet so hard to achieve.

My hope in this bill is that when lifting persons out of poverty, we allow them to look ahead with confidence. The fact is that when you are deep into everyday poverty, unable to know what tomorrow will be made of, when you have to make a choice between groceries or medical care that you need, it’s impossible to look ahead with hope.

By lifting persons with disabilities out of poverty, we do more than provide material help. We put someone in a place of safety where they can finally take a breath, step back and reflect on the possibilities that lie ahead of them. Persons with disabilities, I assure you, will always have more potential than limits. That is, of course, when the powers in place do their job in removing the barriers one by one.

Colleagues, let’s tackle one very crucial barrier, poverty, by sending Bill C-22 to committee.