Hon. Mohamed-Iqbal Ravalia introduced Bill S-253, An Act respecting a national framework for fetal alcohol spectrum disorder.

(Bill read first time.)

Hon. Mohamed-Iqbal Ravalia: Honourable senators, I rise today on behalf of Senator Duncan and myself to help recognize the tremendous efforts of the Canada Fetal Alcohol Spectrum Disorder Research Network. With interdisciplinary collaborators, researchers and partners across the nation, they work together to address the nationwide gaps in the diagnostic and treatment services available to individuals with fetal alcohol spectrum disorder, or FASD, and to improve the lives of those who are affected. The group is also Canada’s first comprehensive national FASD research network.

Fetal alcohol spectrum disorder is a complex and lifelong disability. It is the leading cause of neurodevelopmental disability in Canada, affecting 4% of the population. For context, more individuals live with the disorder than with autism, cerebral palsy, Down syndrome and Tourette syndrome combined. Those affected may face challenges with motor skills, physical health, learning, memory, attention, communication, emotional regulation and social skills.

Further measures can and should be taken to address and foster positive outcomes. Currently, access to diagnostic clinics, interventions and supports is patchy at best across our nation. The immense variation of symptoms and the complexity of the challenges associated means that a multidisciplinary diagnostic approach is required to diagnose the disorder, and that each individual requires a comprehensive, tailored plan to address their unique and specific needs.

Representatives from the Canada Fetal Alcohol Spectrum Disorder Research Network, or CanFASD, are in Ottawa this week for meetings with members of Parliament, senators and government officials to discuss initiatives to address fetal alcohol spectrum disorder. I would like to thank them for their continued efforts in ensuring that individuals affected by the disorder and their caregivers have the supports that they need.

Through interdisciplinary collaboration, we must continue to work toward standardizing guidelines, improving diagnostic criteria and data, as well as enhanced reporting tools that allow us to expand knowledge bases and facilitate information exchange that will continue to increase both public and professional awareness.

Please join me in acknowledging the representatives who have joined us here today in the gallery. Thank you. Meegwetch.